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Gene Therapy Interview
Dr Michiel Coppens joined HFA for an exclusive interview on Gene Therapy: Ask Me Anything. The video is now available!
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Damon Courtenay Memorial Endowment Fund
The 2024 funding round for the Damon Courtenay Memorial Endowment Fund (DCMEF) is now open.
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PROBE Australia Study
Participate in the PROBE Australia Study today. Contribute to our real-world evidence on haemophilia.
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National Haemophilia
Read the March issue of National Haemophilia, available now online:
  • World Haemophilia Day
  • Rare Disease Day
  • FIFO Workers
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HFA Gene Therapy Snapshot Survey

HFA would like to understand what our community members want from their haemophilia treatments and your perspectives on gene therapy...
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Gene therapy: Ask me anything with Dr Michiel Coppens

Gene therapy interview with Dr Michiel Coppens now available

On 14 May 2024 we were fortunate to have Dr Michiel Coppens join us at the HFA office for an...
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UK Hepatitis C Inquiry

The report on the UK Infected Blood Inquiry investigating contaminated blood and blood products was released on 20 May 2024....
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Bleeding Disorders Awareness Month
This October help us raise awareness for haemophilia, von Willebrand disease and other bleeding disorders.
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Oct
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Bleeding Disorders Awareness Month 2024

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Jenny - acquired haemophilia

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully...
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Claire speaking at the 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia,...
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Growing up with Glanzmann thrombasthenia 

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your...
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Living with Glanzmann thrombasthenia 

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences...
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